IBS

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Lomotil Can't get it in UK

Lomotil Can't get it in UK

Lomtil or Co Phenodrone is the only thing that really helps bad IBS Day days, but it is no longer available in the UK. Loperamide is not enough on bad days and although Codeine helps I don't want to use it during the day or become dependent on it . Any suggestions?

A myIBSteam Member said:

I'd used lomotil on and off for many years. It does make me feel sick sometimes but that's not the norm. It's a wonder for me

posted over 1 year ago

Has anyone taken lomotil and had head issues.

Has anyone taken lomotil and had head issues.

My Dr seems to think it's the medication. It's very debilitating. I'm afraid to do anything. It gets worse as the day goes on. By like 3 I have to stay seated. Just wondering if anyone else has had any head issues.

A myIBSteam Member said:

I have taken lomotil for years and never had a problem, I take 2tablets 3 times a day. Sorry you are having problems as the drug works very well for me!… read more

posted over 1 year ago

Hi, I am so fed up of having to rush to toilet with diarrhoea, & not always getting there in time.

Hi, I am so fed up of having to rush to toilet with diarrhoea, & not always getting there in time.

I’ve been like this for many years but it’s getting much worse as I’ve got older, I’m now 68 yrs. & have had many accidents during this time. I’m at my wits end as this is controlling my life. I am otherwise fit & healthy.
Doctor has prescribed suppositories which I use for every bowel movement, if I didn’t use these I would get all of the symptoms of wanting to go, but unable to go, until I had to rush to… read more

A myIBSteam Member said:

Never used Immodium this way but will sure try that! Messing myself for 25 years..so degrading! Dont know what to eat anymore! Also have gained 15 lbs… read more

posted 21 days ago

Has anyone ever not responded to any ibs meds and gi prescribed ibd or chrones meds?

Has anyone ever not responded to any ibs meds and gi prescribed ibd or chrones meds?

Any medical professionals out there know jd that would be an appropriate treatment plan if nothing else is working or that I am able to take? My GI is talking about putting me back on steroids to manage this because I have those days I feel like I'm at the starting line and it's incredibly frustrating.

A myIBSteam Member said:

Lomitil only works for a few hours and Imodium has stopped working.

posted over 2 years ago

Does anyone else get body aches when there IBS is flaring up?

Does anyone else get body aches when there IBS is flaring up?

I was just wondering does anyone experience body aches and fatigue with IBS? Last night after I went to sleep I started having body aches and was like NO!! I can.t get sick... I did have a flare up yesterday and it when on all day and apparently through the night with the aches and then this morning too. I've been on a light diet since yesterday. Just curious if body aches is normal. I feel so sleepy and run down

A myIBSteam Member said:

All over body aches, exhaustion, nausea, and I thought extreme leg fatigue from chronic fatigue syndrome but turns out could be from the excessive… read more

posted 4 months ago
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